Last week, I had a follow up with my ENT to go over the results of my CT scan. The short story is that he wants to remove not only the recurrence of the hemangioma in my neck, but also the muscle that it is attached to. He said it's not a rush, but he suggested having the surgery in the next 2 to 3 months.
I had another hearing test while I was there. Good news is that my hearing has not gotten any worse since January. The bad news is that they still can't figure out any reason for the tinnitus and ear pain. So this week, I'll meet with their chief audiologist to see if she has any suggestions.
The next stop was my primary doc. I wanted her opinion on the surgery, and also just to follow up in general. She had no ideas about the hemangioma. Even looked it up on her medical sites and couldn't find any information. She said it won't hurt to get a second opinion. Sure, in my spare time. Other than that, when I told her how bad I was still feeling, she suggested I try an elimination diet to see if there is any food allergy contributing to my issues (migraines, exhaustion, fevers). She's not the first person to tell me that you can be gluten intolerant without a positive celiac panel. I told her I'd give it a try, but I don't think that's the issue. I've been trying the diet for about 5 days, and the biggest problem is that I'm starving!
Today I took a vacation day from work (at least a little extra rest) so I can take Jackson to the Lyme specialist. It's his follow up appointment. My follow up is next week. But first, later this week I have a dermatologist appointment and the appointment with the audiologist. Busy, busy!
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