It's been one of those weeks. All of the running around to the doctors, and working, has me completely wiped out. Thankfully, Megan took a good nap this afternoon so I was able to take one, too. She wants to go to the pool later, which will wipe me out even more.
This week I had an uneventful visit with the dermatologist. Then I met with the audiologist. As I already knew, there is no cure for tinnitus. She offered a few suggestions of things that I can do to help, but no matter what, she said it will take time. Even if it is a result of the Lyme, she said it could take up to 18months after treatment to get better. That's not helping.
I'm still on the gluten free diet, which really sucks. I wish all of these trials didn't take so long to get results. It's been a week and a half and I see no difference. Man, I just want a magic pill! I'm eating right, sleeping as much as possible, cutting all of the bad stuff out of my life, and I still feel like crap on a regular basis.
Saturday, June 25, 2011
Monday, June 20, 2011
Doctors, doctors, doctors
Last week, I had a follow up with my ENT to go over the results of my CT scan. The short story is that he wants to remove not only the recurrence of the hemangioma in my neck, but also the muscle that it is attached to. He said it's not a rush, but he suggested having the surgery in the next 2 to 3 months.
I had another hearing test while I was there. Good news is that my hearing has not gotten any worse since January. The bad news is that they still can't figure out any reason for the tinnitus and ear pain. So this week, I'll meet with their chief audiologist to see if she has any suggestions.
The next stop was my primary doc. I wanted her opinion on the surgery, and also just to follow up in general. She had no ideas about the hemangioma. Even looked it up on her medical sites and couldn't find any information. She said it won't hurt to get a second opinion. Sure, in my spare time. Other than that, when I told her how bad I was still feeling, she suggested I try an elimination diet to see if there is any food allergy contributing to my issues (migraines, exhaustion, fevers). She's not the first person to tell me that you can be gluten intolerant without a positive celiac panel. I told her I'd give it a try, but I don't think that's the issue. I've been trying the diet for about 5 days, and the biggest problem is that I'm starving!
Today I took a vacation day from work (at least a little extra rest) so I can take Jackson to the Lyme specialist. It's his follow up appointment. My follow up is next week. But first, later this week I have a dermatologist appointment and the appointment with the audiologist. Busy, busy!
I had another hearing test while I was there. Good news is that my hearing has not gotten any worse since January. The bad news is that they still can't figure out any reason for the tinnitus and ear pain. So this week, I'll meet with their chief audiologist to see if she has any suggestions.
The next stop was my primary doc. I wanted her opinion on the surgery, and also just to follow up in general. She had no ideas about the hemangioma. Even looked it up on her medical sites and couldn't find any information. She said it won't hurt to get a second opinion. Sure, in my spare time. Other than that, when I told her how bad I was still feeling, she suggested I try an elimination diet to see if there is any food allergy contributing to my issues (migraines, exhaustion, fevers). She's not the first person to tell me that you can be gluten intolerant without a positive celiac panel. I told her I'd give it a try, but I don't think that's the issue. I've been trying the diet for about 5 days, and the biggest problem is that I'm starving!
Today I took a vacation day from work (at least a little extra rest) so I can take Jackson to the Lyme specialist. It's his follow up appointment. My follow up is next week. But first, later this week I have a dermatologist appointment and the appointment with the audiologist. Busy, busy!
Sunday, June 12, 2011
Still the same
It's been about 6 weeks since I finished treatment, and I don't feel like much has changed. I'm still running fevers on a regular basis, still have ear pain and tinnitus, and the exhaustion is even worse since starting back to work in the office. Now I have less time to cook healthy food. And more running around to do. I'm not sure how long I can keep up at this pace before I completely burn out.
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